Clinical Research Methodology Course
"Databases and Registries in Rheumatology: Complementing Randomized Clinical Trials"
Friday, December 15, 2006
NYU Hospital for Joint Diseases, Loeb Auditorium
301 East 17th Street, New York, NY 10003
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| Time |
Event |
View Slides |
Slides |
MP3 |
Podcast
(ITunes) |
| 8:30-8:45 |
Welcome
Yusuf Yazici, MD |
 |
 |
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| 8:45-9:15 |
Use and Abuse of the Randomized Clinical Trial
Hasan Yazici, MD |
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 |
 |
| 9:15-10:00 |
Use of Whole Population Registers: Advantages and Disadvantages
Alan Silman, MD |
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| 10:00-10:15 |
Break |
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| 10:15-10:45 |
Longitudinal Databases and Registries-Why?
Theodore Pincus, MD |
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| 10:45-11:15 |
Scandinavian Registries in Arthritis and Normal Populations
Tuulikki Sokka, MD, PhD |
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| 11:15-11:45 |
The Norfolk Arthritis Register (NOAR)
Alan Silman, MD |
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| 11:45–12:45 |
Lunch |
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| 12:45-13:30 |
Advantages and disadvantages of joint counts, radiographs, laboratory tests and patient questionnaires in Longitudinal Observational Studies
Theodore Pincus, MD |
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| 13:30 – 14:00 |
Expanding the Research Domains of Arthritis Clinical Databases: Pharmacogenetics of Rheumatoid Arthritis Treatments.
Jeffrey Greenberg, MD, MPH |
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| 14:00–14:30 |
Other databanks in the United States National Data Bank for Rheumatic Diseases
Theodore Pincus, MD |
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| 14:30- 14:45 |
Break |
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| 14:45 - 15:15 |
Implementing Patient Monitoring and Data Collection in Routine Care-NYU Hospital for Joint Diseases Arthritis Registry Monitoring Database (ARMD) and Brooklyn Outcomes of Arthritis Registry Database (BOARD)
Yusuf Yazici, MD |
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| 15:15-15:45 |
Data Collection in Private Practice and Implementation with Electronic Medical Records
Martin Bergman, MD |
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| 15:45:-16:15 |
Roundtable Discussion (including a formal comparison of the data from different registries/databases)
- Steven Abramson, MD (Chair)
- Theodore Pincus, MD
- Hasan Yazici, MD
- Alan Silman, MD
- Tuulikki Sokka, MD, PhD
- Yusuf Yazici, MD
- Jeffrey Greenberg, MD, MPH
- Martin Bergman, MD
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| 16:15-16:30 |
Closing Remarks |
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| 16:30- 18:00 |
Practical workshop for patient questionnaires
- Theodore Pincus, MD
- Yusuf Yazici, MD
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| Supported by unrestricted educational grants from Centocor, Inc. and Genentech, Inc |
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